Jun. 15th, 2009

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With a busy time of it, I trust that I’m forgiven for overlooking the journal!

Today was a busy one too – after C’s two appointments this morning (and wait for blood tests afterwards), I’ve been trying to catch up since. Tomorrow, of course, is an evening appointment at Sussex Nuffield Hospital, Brighton, at 1900, then back in time for Wednesday morning 0930 at the Forvie/HD clinic at Addenbrookes Hospital, Cambridge! Thursday, not just a CMA due in, then a discussion with the woman from ICAS in regards to the doctor who got us in this mess in the first place!

In the meantime, yes, it’s been hectic all around. Many things happening. Most important for me  being new phones (the last cordless phones were cutting out after less than five minutes, after four years of use), and a new Apple aluminium thin keyboard, which is useful for having all the keys in the right places (versus a PC one) and having a visible Caps Lock light (useful for when trying to TAB and hitting it inadvertently!) Sound simple, but it’s the things that I spend most time with. Also, lots of purchases, one leaving the flat – we’ve sold the colour laser printer via eBay, and replaced it with a mono one. No major problems, just an issue with cost of refilling it every few months working out more than we had hoped. The sale has helped pay for it’s replacement. Also, on Friday and Sunday, we had stops at Lush Cambridge for several armfuls of items.

Transport – meh, lots to talk about. I’ll come back to that.

So, I’m kind of in two minds, but then again, maybe that’s inevitable. (If you’ve just started reading my journal, you may wish to go back over the lump/bulge/bigger issues since November 2008). As to how I’ve ended up with two referrals for one set of work, well, that’s something else. Just hope that one way or another, this can be looked at, and diagnosed with whatever.

I had kind of hoped to say something thoughtful and monumental. It’s almost like being at the beginning again. Remember back to March 30/31 and April 1 2007, when I first came down for an appointment at the hospital – and ended up falling in love with Caroline. Many thoughts through my head that day – but the main reason for going was, of course, a prequel to surgery. As for everything that happened between those two things, well, what is done is done. In the meantime, I’ve became a better person for being in love, but that might still be skirting the situation. The reason for going down, is, of course, going to lead (eventually, more than likely) to some further surgical work. I shall take one day at a time on that score.

In the meantime, Wednesday morning, and it’s the Genetics thing again. Now, I’ve got this, like it or not. I’ve been trying to split bad feelings to between what should normally be expected (hormonal ups and downs), feelings of anxiety/depression (I’ve begun to think that it is mostly anxiety, but depression perhaps at certain times), and potentially explosive reactions that I’d seen before from my father. Of course, he couldn’t control the latter, and it’s not easy to watch. Especially when I didn’t know why, at that time. However, it does allow me to know what to watch out for – hope that doesn’t sound bad, but I frequently have to take the best of bad situations! Over the last few months, stability/walking has been an issue. Okay, I did have a fairly bad fall (well two of them one evening peak in central London) and that didn’t help – physically or mentally. It’s not a good thing to be walking and falling face-first. Especially when it’s not the first time. I am trying to take things a little easier for now. It’s kind of just as well that we’ve settled in where we are, for now, but never say never. So, how can I work around this? By putting the experience of bad days behind me, and vowing to live for the good ones. However, there’s a slight drawback in having to reveal all my personal problems in the last six months, in the space of several hours… and hopefully, some sleep.

I’ve done many things more than once in my life. Is this going to be the start of another journey, through the remaining months and years of my life? Trying to make the best of life as I can, as we are, and surviving through the bad times. I’d like to give it a go.

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